Pre0136-Migliuolo Stefania - Geriatric oncology · Title: Microsoft PowerPoint - Pre0136-Migliuolo...
Transcript of Pre0136-Migliuolo Stefania - Geriatric oncology · Title: Microsoft PowerPoint - Pre0136-Migliuolo...
25.11.2016
1
Quality of Life
HOT TOPICS IN GERIATRIC ONCOLOGY
Stefania MigliuoloRelations with the scientific community
European Breast Cancer Coalition representing the interestsof European women regarding breast cancer to local and
national authorities as well as to institutions of the European Union.
� 1994 – establishment of Europa Donna, inspired by Umberto Veronesi
� 2016 – 47 member countries
EUROPA DONNA
1
3
24
25
Doctors
PublicAuthorities
Regulators
Media
OpinionLeaders
PatientAdvocacyCoalition
EUROPA DONNA ITALIA: CIRCULAR INFLUENCES EUROPA DONNA ITALIA POLICY AGENDA
The main goals
� To promote the organization of multidisciplinary breast centers (Breast Unit) throughout the country, in accordance with
national regulations and European recommendations.
� To assure in all Regions effective access to personalized
mammography screening programs, based on the individual risk factors, also for women aged over 70.
� For metastatic breast cancer patients: access to the most innovative treatments, more information and support from
doctors and health system.
Senonetwork brings together Italian Btreast Units, Scientific Societies fully
involved in breast cancer’s diagnosis and treatment, and Europa Donna Italia. Senonetwork acts as scientific chosen speaker of the Ministry of Health in order to promote the development of Breast Units.
Coordinator
Luigi Cataliotti
Scientific Societies Representatives:
Ass.ne Italiana di Oncologia Medica (AIOM) - Fabio Puglisi
Ass.ne Italiana Radioterapia Oncologica (AIRO) – Cristiana Vidali
Ass.ne Nazionale Italiana Senologi Chirurghi (A.N.I.S.C.) - Roberto Murgo
Gruppo Italiano Screening Mammografico (GISMa) - Gianni Saguatti
Società Italiana di Anatomia Patologica (SIAPEC-IAP) - Anna Sapino
Società Italiana di Radiologia Medica (SIRM) - Pietro Panizza
Europa Donna Italia
Rosanna D’Antona
European Society of Breast Cancer Specialists
Lorenza Marotti
The partnership with SENONETWORKEuropa Donna Italia - the Regional Network➢ Direct and continuing relationships
with women living in different Italian regions. ➢ Access to up-to-date information
which lead to female population’s empowerment➢ A complete overview of the state-of-the-art, underlying problems and
difficulties but also example of
excellence.
Europa Donna Italia has affiliated member Associations in 14 Regions. Representative of thousands of women all the Country,
they ensure:
16
4
1
2
5
7 4
6
11
2
7
3
11
25.11.2016
2
Our commitment for Quality:
Quality of careQuality of life
THE BREAST UNIT
A Breast Unit is a fully equipped, quality assured, dedicated breast
center that provides competent and comprehensive care
It is associated with a better perception of the patient's quality of life thanks to:➢ the action and support of the multidisciplinary team ➢ a personalized care path
The therapeutic-care model of the Breast Unit
is nowadays considered
a model for the approach and treatment to other tumours
THE THERAPEUTIC-CARE MODELOF THE BREAST UNIT
FOR A BETTER QUALITY OF LIFE
The elderly cancer patient, who often suffers from co-morbidities,can receive special benefits from it
… all women should have access to fully equipped multidisciplinary and multiprofessional
breast clinics based on populationsof around 250,000.
Florence Statement1°Joint Breast Cancer
Conference 1998Cataliotti et al Eur J Cancer, 1999
BU GUIDELINES“The requirements of a specialist breast unit”
EUROPEAN RESOLUTION 2003
EUROPEAN RESOLUTION 2006
“We found that the introduction of teams providing multidisciplinary care for the treatment of breast cancer
was associated with 18% lower breast cancer mortality at five years”
25.11.2016
3
Geneticist
Psycho -
oncologist
Data manager
Patient Advocacy
Technician
Physiotherapist
Surgeon
Medical Oncologist
Pathologist
Radiotherapist
Radiologist
Breast care Nurse
Breast UnitMultidisciplinary team
Europa Donna Italia launched an
awareness-raising journey promoting
Breast Units in each Region, involving
local Institutions, scientific community
and Associations in public meetings.
Lombardia
June 2014
Emilia-Romagna
May 2015Liguria
November 2015
Campania
October 2015
Piemonte
February 2016
Sicilia
October 2014
Calabria
October 2016The main tasks of the Association within the B.U. are:� facilitate the physical and psychological recovery of the patient during and
after illness
� assist with information and advice� evaluate patients satisfaction to control the perceived quality� participate in quality checks of paths, structures, technologies by establishing
evaluation indicators� interact with regional and national Institutions to ask for and ensure equal
diagnosis and treatment throughout the national territory.
Chapter 5
Active participation of citizens, patients and volunteers
Document of the Health Ministry
defining specific
organizational process
of the breast centers network
The Patient Association’s role in the Breast Unit
The training Programme for Patient Association in the BU
Europa Donna Italia developed a training and education program for Patient Advocates
operating within the Breast Units. Stefania MigliuoloRelations with the scientific community